Leiria will host the first National Meeting dedicated to a rare syndrome. The event is scheduled for tomorrow, starting at 12:00, and will take place at Troncão Parque.
The meeting's main objective is to bring together the community of families affected by this rare genetic condition, creating a space for socializing and sharing among people who face similar challenges.
Besides promoting the gathering of families, the event also aims to offer support to this community, contributing to the appreciation and understanding of the issues faced by those living with this rare syndrome.




