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Lito Sousa records emotional video about advancement of rare disease, talks about belief in cure and journey: 'I'm not afraid to die'
extra26 August 2026 at 18:44
Driver and influencer Lito Sousa recorded an emotional video alongside his wife, Mila Seidl, to talk about the progression of Creutzfeldt-Jakob disease, a rare and untreatable condition. He decided to record his speech while he still has preserved cognition, not knowing how long he will have this condition. The disease was diagnosed after the appearance of encephalitis in the brain, which caused loss of movement and difficulty walking. Initially, doctors suspected an autoimmune disease, until a specific marker confirmed the diagnosis of Creutzfeldt-Jakob. Lito stated he is not afraid of dying and expressed his belief in the possibility of a cure.
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